grant recipients

From partnerships, to ticket sales and donated auction items, people like you have helped Believing for Bryleigh Foundation (B4B) make an incredible impact on lives touched by Leukodystrophies throught the U.S. Check out what your support has allowed the Foundation to do this past year.

2022 – 2024 Grant Recipients

Donator & Amount & Additional Details

  • LENNON AID – $5,000

  • LURIE CHILDREN’S FOUNDATION – $1,000

  • AXEL RIODAN – $5,000 – Essential items for comfort including massages
  • LOGAN PARKER – $10,000 – Accessible bike

  • ALICE LILLEY – $10,000 – Helped with an ADA bathroom remodel

  • JOJO STROUP – $10,000 – Medical necessities, help fix the family car, food

  • MARIA & DIEGO REEDER – $4000 – Medical bed, bedding, mattress and topper, fix Diego’s car

  • TYLER MCADAMS – $10,000 – A contribution towards and All-terrain wheelchair accessible vehicle

  • HOPE HOSPICE – $5000

  • WORLDWIDE GRANTS – $45,000 – B4B sent $45,000 across the globe this past year to Tunisia, Philippines and India to support =6 different families who are caring for a child with a Leukodystrophy.

  • CHRISTMAS BLESSINGS – $66,000 – B4B sent Christmas monetary gifts to families around the country that care for a child with a Leukodystrophy.

  • MLD FOUNDATION – $50,000 – Click here for their website to learn about all the great things MLD Foundation is doing!

  • HUNTER’S HOPE FOUNDATION – $50,000 – Click here for their website to learn about all the great things Hunters Hope Foundation is doing!

  • BLANCHARD FAMILY – $10,000 – $50,000 – A contribution towards a dependable vehicle to help get both their daughter and son, Jordan and Joelle, to and from medical appointments.

  • THE SPRAGGINS FAMILY – $10,000 – A contribution towards a wheelchair accessible van for their son Sam.

  • THE WEBB FAMILY – Featured family at the 2022 B4B Benefit Concert – $5,000 – Financial support for anything their son, Owen, needed!

  • BOURASSA FAMILY – $10,000 – To support the families roof repairs and addressing mold issues to provide a clean and safe environment for their son Josh.

  • MYERS FAMILY – $20,000 – To support medical and therapy bills as well as contributed towards a more accessible vehicle for their daughter Amelia.

  • WEBB FAMILY – Featured family at the 2022 B4B Benefit Concert – $5,000 – Financial support for anything their son, Owen, needed!

  • PAULA PIENDA – $5,000 – To support some basic bills like rent and utilities in an effort to support their son Eli.

  • REEDER FAMILY – $5,000 – A contribution towards supporting the Reeder Family with bills and rent as they provide for their two children with a Leukodystrophy, Maria & Diego.

  • ANNA JAMES – $3,000 – To support some basic bills like electricity and car repairs.

  • PHOENIX SANDQUIST – $2,500 – Support for Phoenix to attend Camp Camp, a magical place where children with disabilities can enjoy a summer camp experience!

  • BRIGHTON CENTER – $5,000 – Support to the Brighton Center, the larges nonprofit organization in San Antonio providing pediatric therapy services, inclusive education and special education transition services to 4,000+ children every single year.

2021 – 2022 Grant Recipients

Donator & Amount & Additional Details

  • JALEN & KYLAR WATERMAN – $2,500 – Continued medical care, they are both affected with ALD

  • SOFIA ANGIULIi – $10,000 – Construction for an accessible bathroom

  • NAOMI HINDMAN – $10,000 – Handicapped accessible van

  • ALICE CARTER – $5,000 – Accessible bike/stroller

  • HOPE HOSPICE – $2,500

  • CHRISTMAS BLESSINGS FOR AFFECTED FAMILIES – B4B spent $30,000 this past Christmas sending various gifts to families around the country that care for a child with a Leukodystrophy.

  • MORGAN’S WONDERLAND – $5000

2019 – 2020 Grant Recipients

Donator & Amount & Additional Details

  • OWEN WEBB – $5,000 – for a therapy dog.

  • BLAINE SCHEIDER – $5,000 to assist with the purchase of an accessible vehicle

  • GIOVANNI & SALVATORE SERENO – $7,000 to assist with the paying of critical medication and past medical bills for the Sereno boys, Giovanni and Salvatore who both have Metochromatic Leukodystrophy (MLD)

  • TEAGAN DONNELLY – $5,000 to assist with paying rent and medical bills.

  • KORBIN WOOTON – $3,000 to pay for travel for a clinical drug study

  • AVERIE WITGEN – $5,000 to assist in the purchase of a wheel chair accessible van

  • CHRISTMAS BLESSINGS FOR AFFECTED FAMILIES – B4B spent $15,000 this past Christmas sending various gifts to families around the country that care for a child with a Leukodystrophy.

  • HOPE HOSPICE NEW BRAUNFELS – $2,500 to support their annual fundraising gala

  • JAMES LUCZAK – $2,500 to support dental work for James. His teeth were affected by late onset MLD.

grant recipients

Hunter’S hOPE & tHE bELIEVING FOR bRYLEIGH fOUNDATION pARTNER uP

The B4B Foundation has formed a major long-term partnership with Hunter’s Hope, a 501(C)3 started and run by Jim Kelly, Hall of Fame quarter back for the Buffalo Bills, his wife Jill, and family.  Jim’s son, Hunter, suffered from a form of Luekodystrophy and passed away at the age of 9.  Together, B4B and Hunter’s Hope are working to create Luekodystrophy Care Networks (LCN) across the country at major children’s hospitals .  LCN’s will bring uncompromising knowledgeable care close to those that need it and will support families in navigating the stormy waters of life with Luekodystrophy. B4B has donated more than $376,000 to date.To read more about Hunter’s Hope, click here.

B4B’s support of the mld foundation is helping families through a compassion fund.

The B4B Foundation continues to work with the MLD Foundation offering not only general operating support but support for their we C.A.R.E.™ mission and their work with implementing MLD NBS. The MLD Foundation is a 24 year old organization led by volunteers supporting the MLD community through annual conferences, connecting and supporting families, influencing and driving research, and advocacy improving policy at the federal, state and local level for MLD and rare diseases. They recently nominated MLD for inclusion on the federal recommended uniform screening panel (RUSP) that many states use to add new diseases to their NBS panels. State implementation of MLD newborn screening is a priority for the foundation so every baby will be screened for MLD and be able to access life changing gene therapy. B4B has donated more than $80,000 to date.To read more about the MLD Foundation, click here.

Believing for Bryleigh foundation scholarship fund at children’s hospital of pittsburgh.

The Children’s Hospital of Pittsburgh (CHP) has a program dedicated to not only caring for patients with MLD but researching the disease as well.  The B4B Foundation has continued to provide a scholarship fund that will help cover the costs of families with a child with MLD to fly to CHP and receive testing, care and support from their first class medical staff.